You know how brave your child truly is.

If your child has been diagnosed with metachromatic leukodystrophy, the Embolden Study may be an option.

We’re looking for infants and children 18 months to six years old to participate in this clinical research study. The Embolden Study is evaluating the safety and effects of a study drug on gross motor function (the abilities required to control the large muscles of the body for walking, running, sitting, crawling, and other activities) in children with late infantile MLD.

Individuals will be evaluated to determine their eligibility to participate in the study. Each child who qualifies will receive the study drug and access to MLD-focused medical care at no cost.

Learn more about the Embolden Study.

Interested in seeing if your child may qualify to take part in this study?

Enter your zip code below or select the map to find the participating site(s) nearest you.

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Future site locations